Look guys, if you're faced with long term medical problem, the first think you do is contact the finacial consultant at the hospital or wherver, if they don't have one check for a social worker or whatever ails you .org
You can apply for grants to help you with costs. Gas. co pays, scripts, health insuracne premuims, you name it they have a program.
The internet has coupons for every drug out there,
Income guidlines (at least in ny) are 500% above the poverty level, this nets out to about 130k in income and you will qualify for assistance.
If you get a diagnosis, file for ssd asap.SSd is retroactive to the date filed.
Obviously none of this helps you with your health but one less thing to worry about.